SAVE SMA TYPE 1 PATIENT BABIES, BEFORE IT'S TOO LATE!
MIRHAN DENIZ SINCANLIKURSAD OMERALI URUNI have just been aware of SMA (Spinal Mascular Atrophy) desease last month by chance, by participating in an online fundraising. SMA is a rare genetical disorder. After around 1.5 months the baby is born, their muscles start to malfunction, then their internal organs and lungs, at the end they can't make it before they turn 2. And there are only a few treatments for this. One of them, Zolgensma gene therapy, is pretty new and very powerful (almost miraculous). And it is notorious for being the MOST EXPENSIVE DRUG on the world. 2.1 million dollars. TWO POINT ONE FUCKING MILLION DOLLARS!!!
Also another shit thing is, there are limitations on this treatment. The baby shouldn't be over an age and weight. One of the parents told me that they have to keep the baby hungry lately, because they have to keep the baby's weight below a threshold, otherwise baby won't be treated.
Right now I am in contact with parents of some of the babies who have SMA Type 1. They have been grinding hard to raise awareness and money, but so far they need a lot more money to gather, and unfortunately the babies have very limited time left.
So I am adding their charity ETH addresses to the proxy sale contract, and I am making them my first priority on this charity event. BASTARDS CAN SAVE THE BABIES!
One of the families already had crypto wallets, I helped the other one to open one in an exchange.
I feel very weird to say this, but we are ensured from the families that if the baby can't make until the money is raised, the money gathered will be forwarded for another baby in need for Zolgensma gene therapy. If there is more money raised than enough, then the same procedure will be done. Actually in last weeks a similar scenario happened. When crypto community in Turkey involved in gathering money for a baby, they raised so much money, there was a lot extra. The first baby went to USA for treatment, and extra money went to another baby and she is going to USA for treatment too!
I will personally ask you to consider forwarding your donation upon minting to one of the babies in the list. Because we BASTARDS, can play a major role to save them. If you want to donate to another option, it is completely fine though, the reason for this whole charity thing after all is to make the world a better place!
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